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“They Keep Telling Me I’m Crazy”: A Navy Seal’s Desperate Search For Answers About His Own Brain Injury & His Family’s Cause Now




All of this described in the article (including suicide) is so common after brain injuries, and for the most part, AMA does not have nor use the treatments that can be so effective. 
My husband’s first symptomatic concussion was in October 1997, with countless more subsequently. We have found and continue to use treatments for him that WORK. I continue to study nutrition and alternative healing, as I have for over 50 years, with a focus on brain healing since 1997, and periodically we come up with new effective treatments. 
First understand, the emotions and behaviors described in this article are very common. Do not dismiss them, nor blame them on the one suffering any more than you would blame a paraplegic for being unable to move the affected parts of their body. It is a physical injury with physical damage that plays out through pain and behaviors, and it is most definitely not simply a mental problem. It can be a very complex situation when the patient is violent and there are young children in the house, especially with limited financial resources, so families must stay safe! Still, try and remember the patient is unable or barely able to control an angry, injured brain, and don’t add blame to the problem. Families not living with the patient can be a problem as well if they don’t understand the realties of brain injury. They should all read the article below. 
Pharmaceuticals are a mixed bag. They can help, but they can also create more problems. Use with great caution. My husband still uses some pharmaceuticals periodically, for specific purposes, but some he was given over the decades were nightmares. In addition, he has had to go through withdrawal or tapering so many times, he’s become an expert. The term tapering, btw, refers to drugs that won’t kill you if you stop taking them cold, but they will create awful symptoms, and you do have to go through what is essentially withdrawal. If you’re concerned about the need to withdraw from any medication, ask the doctor the question “Is this drug addictive or is it one I will have to taper off of or can I stop taking it cold?”


Short form, the positive treatments my husband and I strongly recommend are listed below. They may or may not return the TBI survivor to being the person they were before, but they’ll make big differences in pain levels, ability to control emotions, ability to walk (I’ve had to spot my husband when he walked a number of times over the years), improved memory, ability to participate in normal life, and much more. As one stroke victim told us about one of these treatments, mentioned immediately below, instead of being left with a life sentence, the treatments gave him his life back. 


A tool AMA uses for 15 conditions, brain injuries NOT included, is hyperbaric oxygen therapy (HBOT). It produces nearly miraculous results for brain healing, and not just from concussions, but from strokes and cerebral palsy, for instance. Anyone who has observed the difference before and after treatment will agree. My husband has experienced the miracles himself (more than a few times!!), and we have witnessed miracles in other people with the 2 other conditions mentioned. The treatment involves preferably breathing 100% oxygen while in a chamber that will raise the atmospheric pressure around the person, forcing oxygen into tissues and creating noticeable healing at least after 2 weeks of regular treatments, sometimes sooner. The protocol of my husband’s first HBOT was being in a 100% oxygen environment at 1.5 ATA (atmospheric pressure measurement) for 1 hour at pressure, twice a day with a couple of hours in between, 5 days a week with 2 days off a week, for 4 weeks (this degree of treatment can only occur in a clinic with trained techs. Just breathing 100% oxygen while under pressure in a chamber produces about 95% the same results, and is how he now is getting his HBOT). That is essentially the maximum treatment for a period of time in order to avoid oxygen toxicity. That degree of intensity of treatment has not been possible since that first round of sessions, but we bought our own hyperbaric chamber, and buy oxygen regularly (with his neurologist’s full support) so he can get less intensive rounds as needed (and they are needed). My husband is alive today because of HBOT. That is the literal truth. HBOT is THE most important treatment to pursue. 


Hormone testing! There are 3 glands in the brain (hypothalamus, pituitary, and pineal) that are involved in hormone regulation. Those glands can be affected by a brain injury. My husband is taking 2 hormones on a regular basis, has been since 2006, and likely will for the rest of his life. 


Diet is also.a big player. A high carb diet is NOT your friend. Look into neurologist Dr. David Perlmutter’s book, Grain Brain (and he has written more books), or the GAPS diet or SCD diet (and there are others) for more detail on this. My former carb addict, pizza restaurant owner/operator for 4 decades husband has been on a low carb diet since 2010, with very significant positive results, and quick regression when the care load gets too high. Good diet also includes avoiding junk food, making sure there’s the proper balance of Omega-3s to Omega-6 fats in the diet, which generally means eating a lot of fatty fish, preferably small ones to avoid mercury, and/or taking supplements, and taking vitamin D supplements as well as spending some time in the sun with no sunscreen on in the early or late day. Probiotics are incredibly important for many health issues, and the best form is from foods, such as plain yogurt and kefir (no sugar!), water kefir (sort of like healthy soda, and very easy to make and flavor at home), kombucha, and fermented foods such as sauerkraut and various pickles (from the refrigerated section!).
Also remember the brain is 60% fat and you need good fats in your diet to help keep the brain healthy. Good fats are olive and avocado oils, butter from grassfed cattle (grassfed is very important! And yes, butter!), lard from pastured pigs, fats from the meat of grassfed (aka pastured) animals (and that also includes eggs!). And eat your greens! Your mama was right!


In the past, we have used amino acids for symptomatic relief. It’s been several years since we have used those, so my memory of which does what isn’t very clear. I know we did use branched chain amino acids to reduce cataplectic seizures, with the trade off of increased headache.


CBD oil! This is a relatively recent addition to our tool set. We were seeing an integrative medicine doctor, and my husband told him he was having trouble sleeping. The doctor recommended a specific CBD oil that he had researched and sold out of his office (Quicksilver Scientifics Colorado Hemp Oil – legal in all states). He said it was 85% bioavailable, unlike the more common 25% bioavailability of other products he found at the time. We’d tried CBD before with no results, but figured it was worth a try. My husband was having 4 or 5 pseudo seizures a week (pseudo only in that they were not epileptic in nature, but other creative ways the brain can affect one’s body). We got home that night, and my husband did his first sublingual dose that evening, doing 4 doses of 4 drops a day. Two weeks later, we realized he was going through a minor withdrawal from a medication he had been having to use to stop the seizures. The seizures had stopped completely from that first dose, meaning he’d had no medication for 2 weeks, and we were astonished! Due to a completely unrelated health issue that was the result of bites of some outdoor critter than led to 18 months of my husband having to take awful medications to get rid of what those bites had led to, my husband lost about 4 years of progress from the brain healing we’d gotten, and the seizures have returned to some extent. He has been making progress back to better brain health, but it was a very upsetting set back. Remember that even with healing, the injured brain is still more susceptible to other impacts, like very mild blows to the brain causing another concussion, being more sensitive to medications or light or noise or confusion, etc. Expect set backs, but you can work through them. 
There may be other CBD oil that is equally effective or perhaps even more so, but I’m not familiar with them, and what we have works. 


Even more recent is some new medication that may be very promising. These are the migraine pharmaceuticals, Aimovig, Ajovy, or Emgality (don’t be misled by the term migraine). My husband tried the Aimovig recently. It is delivered via a self-injector like Epi-Pens are. He got his first dose in his neurologist office, and it indeed, it slowly erased his massive headache down to a 4 on a 10 scale (unlike the 6 which is normal for him). This drug works by binding to the receptor sites in the brain that are the source of headache pain. The next day, my husband gave himself his vitamin D injection, and unfortunately it appears that the vitamin D binds to the same sites, so the headache reduction was immediately reversed. He just had his first injection of Ajovy (injected with a regular needle, something he can do himself), and so far, 4 days later, it does seem to be keeping the headache at bay. This works in a different manner than the Aimovig, and does not bind to brain receptor sites. We have no experience with the Emgality, at least  not yet. 


Later I can go into more detail about the diet, and if I can dredge up the memories, the amino acids, but I’ll be doing that on my blog. I’m will be posting both this article and what I’ve written on my blog. I’m still a caretaker to my husband, and I too am disabled (torn knee menisci), and we’re both 70 years old, so I am unfortunately very slow about posting new information. I’ll do it as I can. 

Author

miranda1133@me.com
Who, What, Where, When and How Introductions are in order. After nearly 7 decades on this planet (so far), my story would be too long, so I am presenting myself relatively short form in the ways that have led me on the path to becoming an autodidact, a teacher, and a healer. I was born Miranda Lee Carter on November 20, 1949 in an Army hospital on the base, the Presidio, in San Francisco, CA. My dad was transferred to Germany when I was 6 months old, and we lived there for 3 years. We were in the first wave of dependents accompanying armed service personnel to Germany after World War II. I have 2 mother tongues, English and German, since I learned both together, but the German is buried pretty deeply, since I’ve rarely had a chance to practice it over the decades. Still, it is in there and can emerge (eventually) when I’m surrounded by German speakers. There is an advantage to learning at least 2 languages at a very young age. Each language has its freedoms and restrictions, its words and concepts that aren’t really translatable. Learning 2 or more languages creates a bit of flexibility in one’s ways of thinking. Being an Army brat, in 7 schools by 7th grade, added to that language flexibility, and taught me to naturally see outside the box. Each place we lived had its own way of doing and seeing things, its own dress code, mindset, events, and ways of speaking, and I learned to see them as interesting differences to observe and participate in (or not), but not as rules to be followed. I have an insatiable curiosity, and was always a voracious reader. My interests span a very wide range of subjects that grows as I learn and find new things of interest me. I am a lifelong learner. i am also stubborn as hell, and despite having been smacked down in various ways during institutional schooling, as well as during life, the Galaxy Quest motto: “Never give up! Never surrender!” is very apropos. I am definitely not a fan of institutional schooling as it is practiced today, nor was I a fan of the less bad version of it that I experienced. After graduating high school, I went to 1 quarter of college at Emory University, and realized college, at least at that level, had the same intent to have you follow the rules instead of providing actual education leading to creative thinking, expression, and problem solving. I had no interest in continuing that direction of education, and my life as an autodidact began. This was way before the internet, so I spent my time scouring bookstores for books that caught my interest, books that often would not be found in libraries. A sidebar I may write about periodically is we homeschooled our 2 daughters, starting in 1988, because I did not want them socialized the way institutional schooling would have done, and I had felt that all children are driven to learn if we don’t get in their way. I lived at home with my parents for a year while I worked full time, then in a series of events, by January 1969, I was living with the 19 year old boy, Phil Paymer, who became the man I have spent my life with, and for whom I still have the greatest and deepest love and respect. It was Phil who led me into healing. He had 2 ongoing health issues when we were first together, a pre-ulcerous condition, and recurring prostate infections, the latter being extremely unusual for a teenager. We went to our family doctor, who prescribed a medication for the pre-ulcerous condition that had horrible potential side effects, and meant Phil couldn’t drink alcohol (not that that was an issue for him, even at that age). The treatment for the prostate infections was antibiotics whenever one occurred. I began my reading in nutrition, and determined that a stress supplement (B vitamins plus vitamin C) might help with the pre-ulcerous condition. In reading about prostate conditions (in big print no less), I discovered that deficiencies in zinc and/or magnesium could create prostate problems. Zinc was emphasized, but I followed my intuition (which has always been correct, if I bother to listen to it), and bought a magnesium supplement. Later in life, we discovered that Phil is sensitive to zinc, and if I’d chosen that, he would not have responded well. Phil experimented with both supplements, finding the stress supplement erased his pre-ulcerous condition. He could tell from physical symptoms when a prostate infection was about to occur, and when he got those signs, he took the magnesium supplement. It absolutely worked. We were stoked! We had found a way to stop those 2 conditions in their tracks! We went to tell our doctor, whose eyes glazed over, and who said “A one a day vitamin can’t hurt.” We never went to see him again, and my perspective on doctors has never been the same. I continued my reading about nutrition, which naturally led me to alternative forms of healing, and I have pursued that study ever since. When Phil had his first symptomatic brain injury in 1997, the focus of my study narrowed for the most part to anything that might provide healing for the brain. His second symptomatic brain injury in 2002, and especially his third one in 2005 sharply increased the intensity of my study. I must include here a DISCLAIMER. What I am publishing in this blog is information my husband and I have gleaned from our own experiences along the path to brain injury healing. What worked or is working for him and us may not work for you and yours. It is completely your decision if you want to try any of the treatments we have used, but again, there are no guarantees it will work for you. As a family with a number of allergies in various family members, we strongly suggest you learn to really listen to your body (if you haven’t already gotten to that point), so you will be personally aware of anything, good or bad, that you experience in your treatments. This goes not only for what we have done, it goes for all treatments and tests that you may experience. An intelligent, informed, and body-conscious patient has the best chance of good health outcomes. (1) Advice This website contains information about medical conditions and treatments.  The information is not advice, and should not be treated as such. (2)      No warranties  The medical information on this website is provided without any representations or warranties, express or implied.  We make no representations or warranties in relation to the medical information on this website.   Without prejudice to the generality of the foregoing paragraph, we do not warrant that: (a) the medical information on this website will be constantly available, or available at all; or (b) the medical information on this website is complete, true, accurate, up-to-date, or non-misleading. (3)      Professional assistance You must not rely on the information on this website as an alternative to medical advice from your doctor or other professional healthcare provider.  If you have any specific questions about any medical matter you should consult your doctor or other professional healthcare provider.  If you think you may be suffering from any medical condition you should seek immediately medical attention.  You should never delay seeking medical advice, disregard medical advice, or discontinue medical treatment because of information on this website. (4)      Limiting our liability   Nothing in this medical disclaimer will:  (a) limit or exclude our liability for death or personal injury resulting from negligence;  (b) limit or exclude our liability for fraud or fraudulent misrepresentation;  (c) limit any of our liabilities in any way that is not permitted under applicable law; or  (d) exclude any of our liabilities that may not be excluded under applicable law. (5)      This disclaimer This medical disclaimer was made using a precedent created by SEQ Legal and available on Website Law.[1]

Brain Injury Healing 101

August 29, 2019